A Long Overdue Update on my Health

Posted on

I am happy to give a long overdue update on my health. I am currently feeling better than I have in a long time; however, I am still having some symptoms that need to be managed. As I mentioned in the last blog post, I have been working with an endocrinologist and an internal medicine doctor. They have both been amazing. For the first time in forever, I have a team of doctors, who are looking at my health as a whole and that has lead us to some answers. Some of the answers are good and some of them are bad.

Starting with the good news:

-The positive Lupus blood test turned out to be a false positive caused by my Rheumatoid Arthritis.

-I am no longer suffering from severe chronic tachycardia (elevated heart rate). One of my medications turned out to be the culprit. My doctors and I worked together to wean me off of it. As soon as I came off the medication entirely, the tachycardia went away. I have been tachycardia free for four whole months!

-The treatment plan, my doctors and I have put together, is managing my pain well. My baseline is a four on the pain scale. After years of living with a benchmark of seven, I never believed we would have my pain so well managed.

Now on to the bad news.

-The testing came back on my thyroid, and I am in the beginning stages of either Hashimoto’s Thyroiditis or Graves disease. They are both autoimmune diseases which affect the thyroid. We will not know which one I have until it progresses further. In the beginning, they have the same appearance on ultrasounds.

-My body is still struggling to process and store vitamins and minerals correctly. This is especially true when it comes to vitamin D, vitamin B-12, and Iron. My doctor has put me on a vitamin D and B-12 supplements. While he would like me on an iron supplement, I have a history of not tolerating them well. So, we are holding off at this time. If my iron levels fall much further, we will have no choice but to supplement, regardless of how sick the iron makes me.

-My cholesterol levels are mildly elevated, which is a new symptom that has presented in the last eight weeks.

-I have developed a sun sensitivity.

My immune system is going haywire. My doctor believes that I am suffering from polypharmacy. Essentially, all of the medications that I am taking to treatment (aka be a functioning person) my pain conditions are wreaking havoc on my immune system. We have reduced my medication load as much as possible. Having done that, we are trying to treat my symptoms using a combination of diet and lifestyle changes. Hopefully, by making these changes, we will see improvement in the symptoms and possibly reverse some of the damage to my immune system.

Regardless, of what new curve balls life throws at us, we continue onward. We keep trucking along and making the best of everything. I refused to allow my pain to beat me and I refuse to let these autoimmune issues beat me. My family needs me, and I refuse to fail them.